Making Science Accessible by Design

At this session from the 2024 AAAS Annual Meeting, 3 experts discuss ways science & engineering can shift to a more holistic paradigm; how to advocate for greater accessibility in science; & how to apply universal design principles to create true inclusion.

Making Science Accessible by Design

This session, from the 2024 AAAS Annual Meeting, brings together 3 experts to discuss ways science & engineering can shift to a more holistic paradigm; how to advocate for greater accessibility in science; and how to apply universal design principles to create true inclusion.

Video Transcript:

English (auto-generated by YouTube)

0:04
so thank you so much for taking the time today to be here with um us and each other um it’s Friday February 16th
0:12
10:30 I am really really excited for this session um called making sucessful
0:18
by Design and we’re lucky to have three wonderful speakers here with us today and I’ll be serving as moderator after
0:24
we hear from each of them U my name is Rachel fle and my pronouns are she her and her
0:30
I’m a mid-40s white woman with faded purple hair and glasses and I’m wearing a blue
0:36
shirt and uh I’ve created a digital access copy of the slides um for anybody
0:42
who needs them so um if you want you can go to this URL
0:49
https t. l g CJs
1:00
so you can take a screenshot of that you you [Music]
1:13
want awesome all right so as we begin I want
1:19
to acknowledge the land on which We Gather land acknowledgements are important to help undo indigenous eraser
1:26
and to tell a more complete truth about our history here in what’s called Denver we’re on
1:32
the traditional territory of the Ute cheyen and Arapaho peoples we also
1:37
recognize the 48 contemporary tribal nations with ties to a land called Colorado we acknowledge that their
1:43
ancestors were forced out by colonization genocide disease and War we
1:49
acknowledge that the cheyen and arapo were victims of a San Creek Massacre committed by the US Army in
1:54
1864 we pay our respects to Elders past and present
2:00
we also acknowledge the extraction of life and labor from millions of people of African descent for more than 400
2:05
years uh Tri headquarters in Washington DC is very near the White House in the capital both of which were built by
2:12
enslaved black laborers and since we’re here at a science meeting we encourage you to
2:18
think about the ways that science has harmed and continues to harm indigenous peoples and those of African descent and
2:23
the power that you have to stop and prair this acknowledgement is just a small step towards creting collaborative
2:30
and respectful relationships with indigenous peoples and Nations you can visit this URL on the slide here
2:38
native-land.ca to learn more about indigenous lands across North America we
2:43
encourage you to consider building relationships with your local indigenous communities and actively supporting them
2:48
whether that’s with time money or land as we acknowledge this history and this
2:53
present we’re called upon to work towards Justice equity and Liberation for all
3:02
so first I’ll introduce our fre speakers and say a quick word about our program
3:07
which uh So speaking first will be Dr Wanda Diaz Ned here uh she is a
3:14
Computing scientist and astrophysicist and the executive director of the historic site for the RSO observatory in
3:20
Puerto Rico uh second will be Amelia doll um at the end of the stage here um she is a
3:28
death archaeologist currently working professionally for the federal government Bureau of Reclamation in quo
3:34
Colorado she earned her bachelor’s degree in art history from G de uh her
3:39
master’s degree in anthropology archaeology from Texas State and two certificates in geographic information
3:46
system from Front Range Community College uh Amelia’s volunteer accomplishments with her online platform
3:52
Amelia the archaeologist um on previous board positions uh earned her um the
3:59
recognition of being one of the Selected Few Rising Stars 2023 uh with Colorado Springs Business
4:06
Journal sl6 6035 media in her personal time she researched as documented
4:13
archaeological resources regarding de people and Antiquity and is illustrating an American Sign Language accessible
4:18
coloring book centered on luded cultural artifacts and then last we’ll hear from
4:24
Dr TC wastman next to Wanda here um she is an indigenous Pacific AF South Asian
4:31
and Asian non-binary person who is late diagnosed as as autistic at 48 years old
4:37
2017 sensor diagnosis TC co-founded the autistic researchers committee at the
4:44
international Society for autism research developed the autism Training Academy offering online training about
4:51
autism and your Divergence and became a founding editorial board member of the only Journal focused on autistic adults
4:58
autism and adulthood TC LED 14 International researchers as a
5:04
primary author on study focused on autism and Universal Design training for faculty and continues to work the
5:10
crossroads of neuro Divergence intersectionality equity and education and the workplace and the social systems
5:17
that impact them uh and as I said my name is Rachel Klein uh I’m an employee of triple as I
5:24
work in the dialogue on science ethics and religion
5:32
excuse me so in 1995 tripas established Dozer the dialogue on science ethics and
5:39
religion to Foster dialogue between scientific and religious communities recognizing of course that those
5:45
communities often overlap and so Dozer does this in a variety of ways um we uh
5:51
have events and do engagement with faith communities seminaries and houses of
5:56
worship uh we host workshops for scientists on how and more inclusively engage with and learn from Fai
6:02
communities I’m doing one tomorrow uh we do public events like our
6:07
December dialog that we had just a couple months ago and we also create a lot of resources including videos profiles of
6:14
scientists guides Etc that highlight areas at this intersection of science technology and
6:20
society and those are we really focus on bringing people together creating space
6:25
for dialogue and discussion identifying shared values recognizing that we won’t always come to agreement but hopefully
6:32
we can increase trust provide room for co-creation and Achieve understanding
6:38
and respect um so just real quick as I mentioned um all the Dozer events you’re
6:44
at one now yay uh and there are more there is one this afternoon I’m run by
6:50
my colleague Curtis Baer in the back there I’m thinking outside the box science engagement and litery and Faith
6:56
communities and then as I mentioned tomorrow I’m running a work sh on science engagement with people of [Music]
7:03
Faith all right so now each of our speakers is going to talk for a few minutes um and then we’ll have some
7:08
moderated discussion moderated by me and then we’ll have some time for audience Q&A uh so there there will be a mic up
7:15
here but if you can’t come up to the mic just raise your hand and we will get a mic to you okay so everybody will talk
7:22
for a couple minutes now first up is Dr wz
7:27
mer good morning to you all morning thank you so much for the very kind
7:33
invitation and Rachel thank you thank you thank you and to the speakers for
7:40
allowing me to participate in this in this conversation in this dialogue that we do my best to to do a very good
7:47
contribution or a at least a good contribution not to disappoint you all and mainly to you all for coming to to
7:54
support this conversation those are the
8:00
have established that dialogue celebrating diversity is the ultimate path in order to achieve a science based
8:09
on equity and I will say also equality that is the ultimate path I will today
8:16
begin talking about attention and why attention attention is uh is often used
8:24
to describe um a network a neuro neuro
8:30
physical Network I would say uh that acts to filter out irrelevant
8:36
information bombarding the senses attention drives performance and
8:41
automaticity in U in skilled performance it also it also has two stages which is
8:49
um the the stimuli the the stimuli the
8:55
the response and that is linked to the decisions we take we a um based based on
9:02
attention also we all humans are always experiencing
9:07
monitoring and um exploring information on daily basis we are we are doing that
9:14
from different modalities of of attention and not only from different
9:19
modalities of attention but um also linked to different ways in which we
9:27
combine our our attention our attention modalities with that what I’m saying is
9:34
that we are always involved All Humans regardless what we do either walking on the street either sitting in here
9:40
analyzing data working in our working in our Gardens regardless our our
9:46
profession we are always involved in a perceptual judgment that is M sorry if I
9:52
raise my voice too much sometimes I get too excited so you may low me down a
9:58
little bit thank you so it’s m is a it involved a
10:04
complex a complex mapping of sensory sensory signals so why am I am I saying all this
10:11
because all all all of us scientists we have achieved great advancements great
10:19
advancements in the quality and resolution of the data we analyed we have achieved great advancements on um
10:28
if the compu computing power the algorithms that we have created to
10:33
analyze the information it’s great achievements that have impacted that
10:39
have impacted the pro the sustainable development goals a decreasing
10:45
decreasing poverty directly related also working on climate change and also um
10:52
for example increasing or decreasing right the ratio of people with that the
10:58
ratio of people that has no access no continuous access to a high quality
11:04
water we have achieved that and we do have achieved that and even though we
11:11
know that there are sensorial modalities that can help in the science and produce
11:17
better science they the use of other sensorial modalities to analyze the
11:23
science it hasn’t progressed it hasn’t progressed that much it lacks the
11:29
credibility and reliability that the visual digital
11:37
Technologies possess without having any any perceptual experiments applied
11:45
to data analysis to simulation of uh data analysis in The Sciences for
11:52
example sound is multi-dimensional I use sound to analyze my data but it’s not
11:58
because I didn’t do it experiments I did experiments and I evidence that the use of audio increases the sensitivity of
12:05
the traditional astrophysicist to evens information that by Nature will be blind to the
12:11
human a sound and I’m going to talk about sound but I refer to all multisensorial perception like htics of
12:19
which if you correct me there is not much um sound is multidimensional is its context
12:26
dependency allows you to analyze information in short and long and long
12:32
scales we did our experiments with evidence that it supports the the
12:38
astronomers or the astrophysicist to spot EV in the data that by Nature are apply to the human eye and it’s not used
12:47
it was used at the end at the end of the 1800s and then it didn’t use it g it
12:53
gave me the impression that I couldn’t I couldn’t I couldn’t
12:59
I I couldn’t I couldn’t it is very hard to say it the notion that our science
13:07
just focusing on the modalities being used by the people that were performing
13:13
the science at that moment that our science just in a natural way evolved
13:19
and as that people were progressing in the science for the same reasons they were progressing I was let up of
13:27
Performing of Performing the science and also a little it brought me the idea
13:32
that perhaps my sensorial modalities were not needed in the science are you
13:39
following me okay so um we I I know that you that you’re
13:48
trusted people that you are people that are that are trusted and that is very
13:54
important because that makes really really really huge your contributions and
13:59
your your party leading the younger the younger generation the scientific Community is
14:07
reaching a point in which they are asking for evidence on the usability of
14:12
multisensorial perception to analyze the information which is very very very good
14:18
and at the same time I go back and I think why are they asking for evidence
14:23
if visual modalities evolved to the point in which they are without any
14:29
seual evidence applied to the analysis to the analysis of of information so I I
14:36
come here today with some recommendations I know that you work really hard I admire you all I take off
14:42
my heart at the advancements you have done especially the advancements on
14:47
battling the numerical the limitations of the traditional numerical methodologies that we use to analyze the
14:55
information which we know it linearizes for generalizes the data and in my in my
15:02
framework using S it allows you to apply
15:08
mathematical States at the be at a posteriority fun not to decide first
15:14
what the mathematical analysis is and then run the data analysis which is very
15:20
very very risky so I come today with um some recommendations and in between
15:26
those recommendations it comes a recomend ation of to stop diverting the
15:31
efforts to mainstream multisensorial practice in science this is very serious
15:38
to stop to stop diverting those into
15:43
education and people aage efforts education on people aage is very very very important it is but I’m a scientist
15:52
if I come to you with a proposal to use multisensoriality to analyze the
15:58
coalition of two black holes two merging two merging two merging bodies do not
16:04
divert it to education and people out there are people that specialize on education and people Outreach and also
16:12
on design another another one is to access the to address from its very
16:19
Roots the unequal access to information it is because of that that uh it is very
16:25
hard for us to progress to get into the field and progress in the field and that
16:31
makes me think and linking it to to attention to attention modalities that
16:36
makes me think that it is about the choices we make the um the the practices
16:44
that we which our institutions engage in order to employ people the digital
16:50
programs that we select it is about uh the practices in which we engage the
16:57
environment in our in our in our working in our working office and to do an
17:03
effort to make the work for Disabilities prestigious not a job at that time when
17:10
um sound stopped being used perhaps as I said it was rendered as not not useful
17:18
or not necessary not not useful not necessary at um a at that time but it
17:24
also it also brings into into the conversation that the context of the person was
17:31
important but secondary important does that ni sense it was important but let’s
17:37
do this first and the context of the person was left out from those moments when we stopped using
17:45
multisensorial perception to to analyze the information I couldn’t bring my own
17:51
modalities in order to analyze the information my hope today is I we leave this room with concrete actions with
17:57
concrete thoughts to uh for all of us to be able to mainstream and be the for in the
18:03
Forefront doing all together the science we want to do thank [Applause]
18:15
you next we have ailia
18:23
do perfect it’s working so my name is ailia doll and my
18:29
say my signs like this just as uh she explained I have a masters in archaeology I have some
18:36
certifications um I have long brown curly hair I have pink glasses I have a rust colored blouse line and a pla
18:48
SK so I’m going to show my slides I’m going to give everybody a moment to read the slide before I go into my
18:54
explanation slide
19:07
is accessibility awareness you know educating other people or their peers to ensure that
19:12
other people have accessibility for all different professions but it’s also an investment
19:18
you know having a feasible archaeology program it’s not just saying oh we have
19:23
disabled archaeologists no everybody actually is inclusive with statement like that
19:31
you know there’s a lot of lacking in the regression of people with disabilities so for the first one in the professional
19:38
field access equivalent to experience isn’t really there you know if you have
19:44
a disabled archaeologist you need to make sure that they’re having the opportunities to be involved in field work in
19:50
discussions and bringing in all of those diversity benefits within it instead of just saying oh look it’s a disabled
19:57
profession because it’s not you know and as de people we have proved
20:02
that we have much better peripheral vision we have better eyesight of looking and noticing things and it’s
20:08
really a benefit to the field work well okay so for example um it was recognize cultural I
20:16
recognize cultural things much better than my co-workers and that’s really a
20:21
benefit having de employees doing the work that I’m doing the third one is about context and
20:30
accommoda accommodation in all context some people are not comfortable saying I have a need or I need an accommodation
20:37
and then there are people like me are like whatever I’ll tell you because I know that it’s going to benefit others
20:43
from the requests and the needs that I have but some people might then become more comfortable to request those
20:49
accommodations but the point is to always make sure that those accommodations are available with request
21:09
there are many different types of archaeologists um there are cultural
21:14
resource managements there are field technicians there are federal preservation officers that are people
21:20
with disabilities but you know often we’re required to you know people say that
21:26
we’re required to disclose our disabil but we’re not and we don’t have to yeah
21:31
we can choose to ask for accommodations and it’s truly up to us in our decisions
21:36
and our discretion whether or not you know we want to have those accommodations and that is the
21:43
supervisor’s responsibility to you know ask what the accommodations are that we
21:48
are requesting and how to accommodate them it’s not their decisions to make it for us but ironically you know when you
21:56
talk about disabilities and you know who are the other disabled archaeologists out there most people will say oh we
22:03
don’t have any there’s no people I’m not disabled I’m just an archaeologist my
22:09
disability is considered an invisible disability because if you were if I was just walking around town you would not
22:15
know that I had a disability until maybe you saw my hearing aids and then you’re like oh okay this person is De and they
22:22
have a disability so for me I have no choice but to disclose my disability
22:27
because you know I need to have an interpreter the voice that you’re hearing right now this is my accommodation because my primary
22:33
language is American side language but often you know people with other
22:38
disabilities that are archaeologists they don’t realize that they are considered to be a disabled
22:44
archaeologist because they don’t see it that way it’s just different classifications and of course you don’t have to disclose them it would be nice
22:51
for them to feel comfortable to disclose it and sometimes people will disclose to me because I’m also an archaeologist
22:57
with disabilities and it’s just again trying to think about how to improve the archaeology field for people with
23:08
disabilities so you’ll see two pictures here on this
23:15
slide they’re they’re up and down and on the first
23:21
picture is a group of people standing around in a Hors shape and then the
23:27
second one is a group of people sitting around that first picture if you look in there you see um pink shorts and a
23:34
colored backpack and then there’s other people that are standing to my left and right and then there’s one student
23:40
that’s standing kind of in front of me and I’m watching them and then in the
23:45
last picture I’m the one in there signing with a group of people all hovered around
23:51
me and these two pictures give you an example of the inequities that are happening in archaeology so this first
23:58
picture is a is not a professional ASL interpreter standing there working for
24:04
me because they didn’t have any in my field school which honestly that was on me I was like do I really need to
24:10
request an interpreter I was a Feld tool there wasn’t a lot of money and I thought I’ll be okay this
24:18
was 2010 2011 and I was not as confident in my
24:24
death identity in 2011 as I am now back then I was like no I don’t needan
24:32
an interpreter and I didn’t realize that you know field school was going to have
24:37
a lot of discussion a lot of lecture a lot of group work that I didn’t anticipate and I should have had an
24:43
interpret as luck would have the woman that sing to my right happened to have been my roommate and she already knew
24:49
some sign which was so amazing and she was willing to interpret for me during
24:54
field work is that ethical is that appropriate no she’s not professional
25:00
and she wasn’t really an interpreter but this is an example of an inequity that’s happening in the field the second
25:07
picture is me giving a presentation to the de students here in Colorado at the Rocky Mountain de school and as you can
25:14
see just all of these students how engaged they are they’re communicating
25:20
in their own language my first language communicating going back and forth socializing and truly engaged in your
25:27
process of learning
25:39
so a really important emphasis accessibility is not a one siiz
25:45
all making an assumption that just because I’m de and somebody else is De we have the same accessibility needs is
25:52
not appropriate so there are a lot of death people there are death people that
25:57
are oral and don’t know any American Sign Language whatsoever there’s somebody like me who utilizes ASL and
26:04
I’m not oral so our accessibility needs would not be the
26:09
same their accessibility needs would be cart or captioning like you have two c
26:14
writers sitting here behind the interpreters that’s their accessibility needs my accessibility need is an ASL
26:20
interpreter they are not the same even though technically our disability is the same we are de so I want to emphasize
26:28
how important it is don’t assume always ask you know with compliance you want to
26:37
make sure that the clients the compliance that you’re providing is sustainable in all different environments information field work etc
26:45
it’s all just important to have that sustainable accessible environment
26:59
so there are four and there are four little boxes on this slide and I’ll
27:05
explain each of
27:11
them so benefits of an inclusive practice there are advantages of
27:17
utilizing this of course making sure the accurate communication style making sure
27:23
that the pace of the instruction is you know works with the profession with the groups uh all of
27:30
that is really important with with field work training whether it’s bilingual trilingual quadal however many lingual
27:36
is necessary archaeologists can provide fieldwork instruction through direct
27:42
communication for example if I am working with a de archaeologist we would have easy
27:49
communication because we speak the same language we’re utilizing the same language we can have effective
27:55
communication by explaining the process to one another the next form of we need to
28:00
communication for example as a disabled archaeologist I have the knowledge to
28:06
discuss certain subjects that I have experienced with things that I have done
28:12
such as media relations social media types of things things that are necessary for social media things that
28:18
are necessary for a website I have that knowledge and I can benefit others and
28:23
other people that might be giving a presentation about that they wouldn’t have the benefit of the knowledge that that I have unless they actually had
28:30
personal direct experience with that particular topic and its relationship to
28:35
making things accessible for people with disabilities can provide oneon-one or
28:41
group Insight actually you know that’s way to better the
28:48
profession if you think oh you know that’s not necessary you know you think
28:53
Archaeology is inclusive not always and then the last attitude
28:59
instuctions recognizing the privilege that for archaeologists that
29:04
are not disabled compared to those that do have disabilities as well as the
29:11
archaeologists that are disabled they are an under representative group so you know there are not a lot of De
29:17
archaeologists but there are a lot of disabled archaeologists so there’s a hierarchy within that Ro group also so
29:24
as you know there’s only a few of us I’m going to say there’s less than deaf archaeologist and so you have to
29:30
recognize that privilege for other people as well so me as a deaf archaeologist compared to a hearing
29:37
disabled archaeologist we are not on the same Equitable plane and so they you know a hearing disabled archaeologist
29:44
still has more privilege than I do as a death dis disabled
29:55
archaeologist so to include accessib [Music] it seems like it’s difficult and it’s an
30:02
arous an arous task but you really have to think about
30:08
there’s a lot of tips there’s a lot of suggestions there’s a lot of Val abilities the internet book websites as
30:14
well as a personal who is a trained archaeologist that has staff that knows
30:19
about it can help you so it doesn’t have to be as difficult as doing a day you
30:25
just have to do work and over time you learn how easy it is to make accommodations so my three
30:31
recommendations is to identify available accessible opportunities and make sure that you have a list of resources for
30:38
that spend some time learning about accountability and determining of what
30:43
type of needs are necessary to be accommodated and also making sure that
30:48
it is sustainable and accessible so that it can continue to evolve for disabled
30:53
archaeologists
30:58
so the next three slides I’m going to put them up it’s got three different sections on them and if you like to take
31:04
a picture of those I’ll leave it up for a moment so that you can talk about those so you can have that for your
31:10
references and then I’ll talk about so archaeology programs
31:16
worldwide don’t really accommodate the needs of disabled archaeologist but it’s
31:21
kind of ironic because as archaeologists we work with communities right we work with cultures we work with people but
31:30
the programs that we’re supposed to be learning for don’t work with us and so we need to acknowledge that
31:36
and acknowledge the lack of inclusivity in archaeology programs and invest time
31:42
in having these conversations to welcome all types of archaeologists into the
31:47
field on this slide there are three boxes there is uh tacal
31:55
displays so there’s t displays allowing tal display says allowing listeners
32:01
including those with visual Cal sensory impairments to touch and feel replicas
32:07
of artifacts the Hands-On opportunities enhanced understanding and engagement of the cultural heritage
32:15
Shar okay and then the next one says accessible Pathways wheelchair ramps and other related accommodations needed for
32:22
making needs make it possible for individuals with modality challeng
32:28
to explore archaeological sites and reveal their historical and cultural significance sign language
32:34
interpretation provides sign language interpreters I.E in the US and bordering countries American Sign Language ASL
32:42
lingua Des sensus meana LSM and linguis desens de CU lsq during guided tours
32:50
lectures presentations webinars which ensure death and part of hearing individuals can access shared
32:55
information
33:01
and then again you can take a picture here here are three more sections that The Interpreter will read for you audio
33:07
descriptions include audio descriptions for exhibits artifacts and all other related
33:13
subjects provide additional context for visit visitors with visual impairment
33:18
which can be accessed through smartphones apps or audio guid such as QR codes the next box is multisensory
33:26
experiences incorp sounds visual sense tactial materials into archaeological
33:31
exhibits provide a more immersive experience for all visitors and the
33:36
final on this slide accessible online meeting organizations parks and tours offering accessible websites mobile apps
33:44
allowing people with disabilities to access research findings virtual fors educational materials
33:55
online and the final slide of strategies methods one box indicating collaborative
34:01
efforts working with disabled peoples to develop accessible programs exhibitions
34:06
educational materials can lead to more meaningful and informed archaeological experiences and the final box
34:14
interpretive programs offer interpretive programs with the design of providing visitors with specific needs readily
34:21
available guided tours with sign language interpreters either in person or virtual readymade videos
34:32
so the bottom line in this whole presentation is consistency is key it takes time to get to certain
34:38
goals to improve to understand the difference of all people with disabilities understanding our needs
34:44
understanding the difference between latent disabled people and people that were born disabled I mean I was born
34:50
disabled or in my sense I was Bor de some people might have become disabled in their 20s or their 30s we don’t don’t
34:57
have the same needs we don’t have the same experiences we haven’t navigated R the same way their needs and my will be
35:04
completely different and just understanding that and making sure that you make improvements for that doing
35:11
Outreach Doing Network networking doing getting reference list so you’re ready to meet the needs of anybody that comes
35:17
into me it’s not just saying oh I’ve got this one person and they know everything you need a group of people it takes a
35:24
community to find everything to fit the community being transparent and having transparent communication will help to
35:30
develop practices from those of us who have disabilities you know I have lots of resources that I can give to anybody
35:37
and I’d be happy to work with them to make sure that they can make things accessible for my needs and for others
35:43
whether it’s research webinars Etc just again make sure that whatever you do is
35:49
sustainable and it is consistent and that’s that’s the most important
35:56
thing yay you have any questions of course we’ll hold all the questions to the end but
36:03
thank [Applause]
36:09
you and next we have Dr TC [Music]
36:15
wman hi every so thanks so much for letting me um bring this together we’re
36:20
talking about accessibility being the building block of innovation and I just want to make note of what both uh Wanda
36:26
and Amilia said which I think is important want to said that science reflected those who were performing science traditionally so we’re talking
36:32
about people with status with privilege we’re talking about people who had access and so as you see us today we’re
36:39
the people who are coming up we’re the people in the next sort of iteration of science so might you to consider that
36:44
when we’re talking about accessibility and Amelia also talked about accessibility being an investment not
36:50
just being a something that we do that includes others it’s not about including us as others it’s about actually
36:56
creating space equal space Equitable space and just space for the rest of us so I just
37:02
wanted to start with that so what do I know when to talk about accessibility as building block of innovation I want to
37:08
lay a foundation first of all because I want to talk about it for the level of higher education because that’s where we
37:14
all started our careers so we know uh through research that one in five um students in higher
37:20
education undergrad college students report being disabled and of those 20%
37:26
only 37% % to disclose their disability to their higher education institutions
37:32
in grad studies 12% of graduate students report having a disability and just under half 48.6 will report their
37:39
disability to their college or their University uh I want to talk specifically about autistic people
37:45
because a I’m autistic but also because we have we unique population with unique needs that’s often misunderstood when it
37:52
comes to combinations and accessibility 44% of artistic adults rooll in a
37:58
postsecondary institution um and in sub sort of education and that’s quite a lot
38:03
for for this for our population and 15% to 36% will disclose their disability so
38:10
we’re missing out you know on supports and on accommodations we’re missing out on the kinds of resources that we
38:16
actually need so why is that it’s like at undergrads and graduate uh school students the number one across the board
38:23
is stigma you C are stigma across the board all the time whether you know the three of us can talk to you about that
38:29
I’m sure um AB nauseum also there’s a fear of negative influence on our application some graduate students um
38:36
you know say that they are encouraged by faculty not to disclose in their application because they probably won’t
38:42
be accepted there’s a fear of discrimination faculty and institutional ignorance faculty lack of awareness and
38:49
faculty lack of desire to accommodate and then not having any kind of a
38:54
whether they’re motivated or not there’s no fall back for us to be able to complain about that or get accommodations in a timely manner there
39:01
are inappropriate accommodations for those of us who went through grad school they’re built for undergrads and there
39:07
one size fits all as Amelia said that just does not work not wanted to be
39:12
labeled the perception of special treatment by faculty staff by other students is also a big one and we’ve all
39:18
had many these negative experiences and of course there just limited supports so
39:24
what can we do to address that how can we make sure that we are being as inclusive as possible well one of the
39:29
waves is Universal Design Universal Design came out of architecture and started in the physical world that it’s
39:36
moved on into teaching and learning and what is Universal Design so UD is the design of environment so that it can be
39:43
accessed understood and that it can be used to the greatest extent possible by as many people as possible regardless of
39:50
your age ability or disability there are seven principles of Universal Design and both and Wanda
39:57
already uh show you these principles at play very simple it should be Equitable in its use it has to be flexible so
40:04
we’re talking about not just spaces and physical spaces we’re also talking about things like you know your syllabus the
40:09
way that your classroom works all of this right it’s got to be flexible it has to be simple and intuitive the
40:15
information has to be perceptible regardless of education level there has to be tolerance for errors so minimizing
40:22
hazards and misunderstandings and low physical effort is required and of course has to
40:27
be size and space appropriate for use thinking about those of us the four of us up here you you know when you’re
40:33
designing something it has to fit all of us in education here are some examples these are pictures of physical spaces
40:40
that were architecturally designed so that they can benefit the most amount of people you can see that it’s basically
40:46
very flat so you can access it whether you’re in a wheelchair or whether you’re walking uh lots of lighting lots of
40:52
space very very safe um there are wheelchair ramps but there are stares
40:58
and they’re made to be what we found out in architecture actually after World War II is that when you design for the most
41:04
amount of people it can you be accessible but it can also be aesthetically freezing and I put a
41:09
picture in there of a curve cut because on the very left of the screen because there was a research that came out of
41:15
Florida in 2022 uh that looked at Curb cuts and they came up with a curb cut effect even though curb Cuts were
41:21
designed for those maybe in wheelchairs uh or using canes the majority of users
41:26
uh in fact the majority to the percentage I think it was over 85% were non- disabled people they were
41:32
able-bodied people so using strollers or skateboards or dollies so when we design
41:38
for those of us who need it all of us benefit here is is a sorry principles in
41:46
action in a syllabus on the left you see a very text Heavy syllabus U you know the fond is not s friendly for example
41:54
and that’s fine for some for some winners but it’s not fine all of us and on the right you see a beauty design
42:00
principles at play so yes there’s text but there’s also visual orientation for the text and on the bottom you’ll see
42:07
the resources so you can access it by listening to what the syllabus you know is you can see videos of it so there
42:14
it’s trying to be as accessible as possible to as many people as possible so what does that mean in terms of
42:21
teaching and learning well what we’ve got to do is we’ve got to stimulate interest and motivation for learning for
42:26
our students by getting multiple options for engagement we have to present information and content in different
42:33
ways not just your tried to tr two dimensional uh written format and we have the differentiate ways that
42:39
students can express what they know again not just plot exams for example
42:45
and why is it important in science in education and across all our Fields because we already exist we’re sitting
42:51
here you’re seeing us live we’re near Divergent we’re intersectional we have multiple disabilities we’re we’re
42:57
already here in science and our voice matters we know that representation is important when we’re doing our research
43:03
we know diversity is important in research study it’s also important when we’re trying to attract the brightest
43:09
minds of tomorrow and for justice it’s incumbent upon us to address the
43:14
inequities and signs that create and uphold barriers while benefiting others
43:19
so I just want to leave you with a quote by Judith Kuman who’s a disability activist she is credited by saying there
43:25
are only two kinds of people people in the world people with a disability and people yet to have a disability so I
43:32
really urge you to keep innovating your Labs your classrooms and your institutions because the innov the
43:38
innovations that we create today may serve you tomorrow thank
43:43
[Applause]
43:49
you so thank you so much to all of our speakers um we will have some lightning
43:55
round questions um a couple from me and then hopefully a couple from you all um
44:03
so yes uh just want to go over some Community Norms um be respectful um of
44:09
all of us here please be professional um and when you ask a
44:14
question please ask an actual question which is generally a short a short sentence where your voice goes up at the
44:22
end so um okay
44:27
so I think uh I’ll ask uh the first question here and
44:34
um what so this is for all of our speakers um what’s one thing that
44:40
everybody here can do when they go back to their homes or workplaces to put these principles into
44:49
practice anybody can jump in I’ll start we have a mon in the
44:55
autism Community we say nothing about hisus and that’s an important Motel whether it’s researching uh you know
45:01
black populations or disabled populations of different kinds including autism research which is what I do you
45:07
know make sure that if you’re creating policies or if you’re creating initiatives that you include those of us
45:13
who are you know uh NE Divergent who are have multiple disabilities and who are intersectional so include us um get
45:20
educated obviously about different kinds of disabilities you know I’m I’m a
45:25
proponent of getting educated about NE diversity obviously um and also make sure that uh when any initiative that’s
45:32
coming out or you know any policy again that you always include as many different kinds of people as possible as
45:39
Amelia said earlier you know there are differences in the kind of experiences we have with in the de Community um
45:45
there are the same in the autistic
45:53
Community um I will I will say to bring to bring everyone into the into the
45:59
conversation that was the question right to bring everyone into into the conversation and to take action I will I
46:07
will encourage you to consider or to Anor that giv a magnifier or adding a
46:16
adding a subtitles to to a screen is not enough I’m supporting what DC said we
46:24
need you need to bring all into to the into the conversation and go beyond that
46:32
considering sometimes there are combinations of things combination of
46:37
modalities that may hinder cognitively the learning or the performance of the
46:43
person that is performing the the research bringing us into the conversation will not will not only make
46:52
us feel that we are that we are welcomed but also it will increase the chances of
46:59
Better Learning and uh better discoveries in in
47:08
sence to add to what’s already been stated and how to take
47:15
action make sure that you have the
47:20
transparency to communicate as far as what actions you have already taken what
47:25
are the steps that you are willing and able to do or what are you need to get
47:32
more research on so again it’s that transparency and communication within the community and say well this is what
47:38
I did this is what I will do this is what we’re going what it’s going to look like in 5 years or in 10 years Etc take
47:44
action and follow up with the transparency of that action thank
47:51
you um and I think um I just want to
47:56
make a comment and ask our speakers if they have anything additional to add um on the idea that uh people who don’t
48:03
identify as disabled or we don’t have a disability um can still benefit from measures designed to increase
48:09
accessibility in science um it’s it’s not something that you know a person
48:15
that isn’t disabled yet will never use like I use the per P all time right like
48:21
I use ramps um so does anybody have any um uh
48:27
example of that or comment they want to make on that idea that it’s not just necessarily for disabled
48:35
people an example this is captioning I mean captioning as simple as that how
48:41
many people enjoy it you know you think that you can hear really far away but you can’t nobody can really hear really
48:47
really far away but you could see caption big screen can’t you so for example like television in a restaurant
48:54
you know there’s a television that’s far away in the C are there could you hear the sound coming out of that TV no but
49:00
can you read the captions of course so my accessibility has become your
49:07
privilege can I yeah um another another example which is um thank Amilia for for
49:15
the example and another example I want to I want to mention is U two weeks ago
49:21
in the Polish Academy of Sciences in took as a as an as an
49:29
organizational or institution institutional project to research on the
49:34
use of sound in order to analyze Astro particles in gravitational ways because
49:40
of the benefits it brings to to the to the mainstream Community or the
49:47
community that has no disabilities but are yet to have a disability and so that is that is one
49:56
one some form because little by little by changing the mindset and pring
50:02
focused on it is it is mainstream science at least what what Wanda wants
50:07
to do it is it is mainstream s science what we want to do and demonstrating
50:12
that we can produce mainstream science then now other scientists are using
50:18
using audio which was initially to Med blind people with the
50:25
information can I just mindly say like a rising tide let alls when you’re designing for us for you know for those
50:32
of us who are non-traditional um people you’re actually designing for yourself as as you know AIA and just said we’re
50:39
also designing for those who are yet diagnosed or undiagnosed or misdiagnosed we’re designing for people who have
50:44
different leur Cs and we’re designing for people who um don’t really know that they need these things yet but they will
50:50
in the future so I’d like to take a couple minutes for any audience question
50:56
questions um if you’d like you can come up to the mic in the middle aisle here and we probably have time for let’s say
51:03
two unfortunately um or if you uh have a question and can’t get out to the mic
51:09
please raise your hand and somebody can um come to you with the m um I just want to speak to you know this last item we
51:17
were talking about how um not only people with dis disability
51:23
SK be benefited um and speaking particularly to this whole captioning
51:29
idea I found it incredibly useful because I find it difficult to
51:35
understand certain accents that people use um and even when I watch movies on
51:40
the television like American H movies and you know the dialogue is flying by
51:46
and so I turn captioning on so I totally totally um buy into this idea that um
51:54
Everybody benefits basically and you may not call what I have a disability but it’s certainly a
52:01
challenge for me thank you
52:07
abely hi thank you so much I also want to follow up on that about uh close
52:13
captioning benefiting everyone and my question is when you change the default
52:18
you can really benefit a lot of people and so what’s one recommendation that each of you have that we can go back and
52:26
take and apply and advocate for in our lives in science and policy that we can
52:31
try and get changed like making close cap me the default in online meetings
52:36
that could really benefit everybody thank [Music]
52:43
you um you’re talking about policy and do we need by Design from the very very
52:51
very the situation I have found in the many I have of practice I would not say
52:58
how many but I have of practice and R from one scientific institution to to
53:05
the other is that we were we were our
53:10
our modalities were rendered as not necessary that is the experience that that I have I have no assessments but
53:16
that is that is my experience what I what I what I think it has to be done is
53:22
that we establish a floor so it can not it cannot go below this point it can go
53:30
from this point from this point up and I’m moving my my hand my hand above
53:37
because the scientific the scientific people is is an economy that is based on
53:43
visual Technologies and what I say visual is monos sensorial Technologies for some of them adding this is an
53:51
investment that will cause losses and I’m talking about not only having
53:57
a captioning I’m talking about allowing us to perform in in the mainstream of the of
54:04
the research that is that is what we want to that that is what we want to achieve that the peoples with these
54:12
abilities can progress and can achieve the same grants all of you have achieved
54:19
and the executive director of an observatory I do not know how I got into
54:27
into that position I work a lot right I know I work a lot but um if you track my
54:36
my how I have progressed in in rank the decades I have been working and
54:42
exerting myself is not proportional and that happens to most
54:48
peoples with disabilities there may be one or two that people refer to but if you go really into statistics and I have
54:56
experence statistics are not um are not honest statistics that address the Gap in
55:02
between what institutions report has achieved and how the people with disabilities are progressing and uh are
55:10
achieving different ranks in the in the field that uh that is something that has
55:16
to be to be addressed so I would go establishing a FL so it cannot go below
55:21
this it has to go it has to go um over that and in that context start to to
55:28
address address um even a policy policy making a dialogues based on on that
55:35
policy and mandates Etc because it’s what is happening and forgive me I’m
55:41
taking over is a situation that has to be addressed as seriously as uh other um
55:48
by issues on um inequalities are being are being addressed
55:54
forg thanks and Amelia has a answer to I could add quickly just to
56:02
that best practice if you’re looking at captions is to have captions always be
56:08
embedded in vergin so therefore it’s always there don’t rely on auto captions
56:14
CU Auto captions are um funny captions if any of you have ever used auto captions there’s a lot of Mumble dumble
56:21
jarble that they’re not actual terms so if you do embedded captions that’s always much better and having Anem an
56:29
option for embedded captions because so for me I like a black background with a
56:35
white font so I have a black background with a white font but for somebody who’s death
56:40
blind they would rather have a yellow font with a black background well even
56:46
possibly without the black font but maybe just a black outline with a yellow cap so my needs as a de person and a a
56:53
different de blind person might have different needs for captions so have them embeded but have them optional as
57:00
far as how you can change what the look of them are so that would be my recommendation for changing that thank
57:08
you um thank you very much all for being here uh again these are our doer events
57:13
we have on this afternoon and uh I am running a workshop tomorrow as well in science engagement with people of
57:20
Faith um we have uh a wonderful resource website at science religion dialogue org
57:26
and you can stay connected with us this way uh and the the last thing I want to
57:32
ask U for our speakers to share is um what’s one thing that um you all see
57:39
that gives you hope in this [Applause]
57:46
space what do I see yes that there is um there is um there
57:54
is an awareness period that um the mindset of the
58:00
population has been has been changing and also the mindset of people have been changing things things right now are
58:08
lots less based on what we think is possible person what we think is
58:13
impossible for example that a person with disabilities may be able to go to the room that we have
58:20
an if you didn’t know about him he’s a he’s he’s an asop and I’m really happy
58:26
that is happening the European Space Agency so that that gives me that gives
58:32
me a a lot of hope that awareness and uh
58:37
the ability the that we have this dialogue is very very important because
58:43
it’s a it’s actual proof of our our inclination our our going to to address
58:51
address this subjects on on daily basis yeah
58:57
yes same thing hope and the fact that there’s a desire to be educated and there’s a desire to make a difference so
59:02
thank you so much for being me
59:11
here you know comparing now to 10 years ago 20 years ago I see so much of a
59:18
difference a lot of change not just in you know the general public but also in
59:24
ourselves as well as ourselves as disabled people we are more confident we are more willing to
59:31
disclose we’re more willing to say hey I need this or I need that or this isn’t
59:36
right we just have a lot more confidence in ourselves than we have in the last two to three decades and so I think that
59:43
that is really pushing the change for and for improvements going forward so in
59:48
20 years I think things are going to more different than they were now compared to 20 years ago thank you so
59:54
much let’s all give a round of applause

Synopsis

This session was hosted as part of the 2024 AAAS Annual Meeting, “Toward Science Without Walls.”

The term “accessibility” is often used in conversations about accommodating people with disabilities. While this is extremely important, accessibility is much broader than just facilitating access. True accessibility should include not only overcoming existing barriers, but also removing the unnecessary barriers entirely. Many areas of society, including science, often lack basic accessibility. Research shows that when barriers to access are removed, everyone benefits. So, how to build more inclusive and accessible science spaces, jobs, and experiences? This session brings together three experts to tackle this topic: an astronomer who started turning her numerical data into sound after she lost her sight, who will discuss ways science and engineering can shift to a more holistic paradigm; an archaeologist who will talk about her experience as a Deaf scientist and how to advocate for greater accessibility in archaeology and science more generally; and an educator and trainer who brings her lived experience as an intersectional autistic individual to her work, who will discuss how to apply universal design principles to create true inclusion. Attendees will leave understanding why accessibility is important, knowing about current efforts to improve accessibility in science, and empowered with actionable ways for how to make their own spaces — including science spaces — more truly accessible to all.

Speakers and Moderator

Wanda Diaz Merced, Researcher, European Gravitational Observatory

Dr. Wanda Diaz Merced is an astronomer who, after losing her sight at the age of 20, embarked on a research path aimed at the sonification of astronomical data, i.e. turning visible signals, as well as invisible ones such as X-rays or gamma rays or gravitational waves, into sounds. Today, she is a world leader in this field of research and works at the European Gravitational Observatory in Cascina, Italy. She was included in the list of the 7 most innovative women in contemporary science by the BBC and has received numerous awards for her work internationally.

Amelia Dall, Archaeologist, Bureau of Reclamation – Eastern Colorado Area Office

Amelia S. Dall, M.A., RPA, GIS, is a highly experienced archaeologist and GIS specialist based in the Greater Colorado Springs Area. Currently serving as an archaeologist at the Bureau of Reclamation in Pueblo, Colorado, she has a background in cultural resource management and GIS analysis. Ms. Dall’s contributions to archaeology extend beyond her professional roles. She has been recognized with numerous awards, including the Lambda Alpha National Honor Society, Volunteer Service Award, and the Rising Stars 2023 Award. Fluent in both English and American Sign Language, Ms. Dall is dedicated to promoting accessibility and inclusion within the archaeological community.

Dr. TC Waisman, Adapt Coach & Leadership Trainer, Autism Training Academy

Since 1998, Dr. Waisman has been an International Coach Federation (ICF) coach and leadership trainer working predominantly in government, healthcare, and education. She completed her doctoral degree in 2020 through the University of Calgary studying leadership, policy, & governance and received her master’s degree in leadership and training in 2005 through Royal Roads University. She is a keynote speaker, commencement speaker, leadership coach, and subject-matter-expert who also consults on policies and practices that affect minoritized, disabled, and LGBTQ+ communities to determine where innovations can be made to remove barriers and improve outcomes for individuals and the organization. Since her autism diagnosis in 2017, Dr. Waisman co-founded the Autistic Researchers Committee (ARC) at the International Society for Autism Research (INSAR); spoke on autism related topics worldwide; published academic literature on autism; and more.

Rachel Kline, Program Associate, Engaging Science Project, AAAS Dialogue on Science, Ethics, and Religion (DoSER) program

Rachel Kline is a Program Associate for the Engaging Scientists project. Originally from Chevy Chase, Maryland, she earned her undergraduate degree in Brain and Cognitive Sciences from MIT and her Master’s in Pharmacology from Boston University. She worked in project management for nearly a decade at both nonprofits and commercial companies, managing numerous projects for clients in government, healthcare, and industry. Drawn by her long-time love of science, Rachel joined AAAS in 2017 as Assistant Editor for the journal Science Robotics. Now with DoSER, Rachel is thrilled to advance science and serve society by building relationships between scientists and faith-based communities.

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